This year the Unique Smiles Association, is organizing the Human Chain of Smiley People, as a support to the Rare Disease Patients. While this event is going on, there will be a Radio Live Link with Radio Proto, requesting people to come at the location and be part of the Human Chain. At the same time, parents and patients will be sharing their experiences living with a Rare Disease.
During the event, there will be activities entertaining the children and a suprise for children and adults alike.
Rare diseases are usually inherited and are usually life-threatening or cause chronic disabilities, but affect such a small number of patients in order for combined efforts to be required.
In the EU, rare is considered every disease that affects less than 5 in 10000 people. This number may seem small, but it translates into approximately 246000 patients in the 27 EU Member States. Most of the patients suffer from very rare diseases that affect 1 in 100000 people or more. It is estimated that there are 5000 – 8000 different diseases in the EU today from which 27 – 36 million people suffer, i.e. 6 – 8% of the population.
We are proud that we will be sponsors of this charity event.
The event will be held on 4th of May in Molos, Limassol at first major pier at 11:00 – 16:00. You are invited to join our common cause and help us raise awareness and funds for our purpose.
Purpose of the event is to reduce the number of people who suffer from these rare deceases that are life-threatening or cause chronic disabilities, Prevent the death of newborns or children caused by them and to preserve the quality of life and socioeconomic potential of the patients.
All revenues will support the Free Services and Programs of the WSIS "Unique Smiles"
For donations, please visit the following page: http://www.monadikaxamogela.org/donate-now/